End of Life Ireland (EOLI) is a volunteer led advocacy group. EOLI believes people faced with a terminal illness should have the right to choose how to die. The law should respect that right and honour their personal autonomy. The end of life is an essential part of life, deserving of dignity. It involves not only the individual but one’s network of social relations from family and friends to carers and wider society.
We prepared an Oireachtas submission in support of the Dying with Dignity Bill 2020 which if legislated, would facilitate a choice of accessing Voluntary Assisted Dying (VAD). This is our submission to the Justice Committee.
EOLI pays tribute to Marie Fleming, Gaynor Ffrench and all who tirelessly campaigned and yet were denied the right to die at a time of their choosing surrounded by loved ones. We pledge to continue their work and pursue the fundamental human right to die legally and safely here in Ireland.
As someone who has faced mortality more than once, Janie is acutely aware of the importance of quality of life and specifically, choices that impact both how we live, as well as die. Communication, Connection, Collaboration combined with a strong sense of social justice is what underpin what she does publicly including leading TEDx Dun Laoghaire and privately as a Specialist Speaker and Life Coach. The direct impact of chronic pain and terminal illness on people and their families that she sees as a secular celebrant has highlighted the changing attitude towards assisted dying. ‘Listening to Gaynor Ffrench back in 2017 made me realise how much this legislation for Voluntary Assisted Dying is needed, she campaigned tirelessly right up to her death.’ Janie along with others who heard Gaynor speak back then are the team at End of Life Ireland.
Justin has over 40 years continuous experience as a solicitor practising in the area of end of life. He is a former chairperson of the Law Society Committee on Probate Administration and Trusts and a former President of the Dublin Solicitors Bar Association. He is one of the founding partners of Partners at Law Solicitors, a law firm based in Dun Laoghaire.
Dr Alan Tuffery is a former university lecturer in physiology and was involved in student services in various roles: personal tutor, developing disability services and managing the College’s tutorial service.
After ‘retirement’ Alan taught on the Trinity Access Programmes.in a volunteer capacity, helping to provide academic advice to students. Among his current interests are the individual in society and improving the quality of life for all. He is
committed to end of life choice and dying with dignity.
Niamh is a technologist specialising in analytics and digital transformation in large multinationals. As a Volunteer Technologist she has lent her expertise to charities working with migrants, older people, people experiencing homelessness, people with addiction issues and people working in the sex industry. She is a Volunteer Solution Architect with the Irish Red Cross, managing their pledging platform, and is a founding member of Dublin 8 Refugee Community Sponsorship Group.
Linked In – Niamh Phelan
TedX Talk 2018
Patrick counts an M.Ed. among his accomplishments and has enjoyed a career of 40 years. He has been a HR Professional in both the automotive and life science industries and a Director of Business Development in the power industry. Currently Patrick specialises as an EHS consultant to a number of clients.
Dr Cameron McLaren is a Medical Oncologist from Melbourne, Victoria. He has been providing assisted dying assessments since the introduction of the Victorian Voluntary Assisted Dying Act. He strongly believes in patient-centred care and sees supporting patients’ applications to assisted dying as intrinsic to this. He is a Clinical Moderator of the Voluntary Assisted Dying Community of Practice; a resource for Victorian doctors to discuss their experiences, and a Board member of Dying with Dignity, Victoria. He is also undertaking a PhD in the effect of Voluntary Assisted Dying on patient-reported quality of life and the grief and bereavement experience of close contacts of assisted dying patients
Nick is a GP working in St Kilda, Victoria and honorary clinical senior lecturer in the Department of General Practice at The University of Melbourne. He did his medical training at Cambridge University and in London before moving to Melbourne in 1988. Nick is also a writer and broadcaster. He has written for many sources, including Crikey.com.au, and published a book for first time fathers. He appears regularly on radio and television. Nick is a Board member of Dying with Dignity Victoria, and has been actively involved with providing Voluntary Assisted Dying care since the Act commenced in June 2019.
Ayke is a retired Dutch oncologist and surgeon, who has worked as a doctor since 1965. In private practice his patients taught him that curing is an obligation. However, if this becomes futile, the next step is care, then terminal care and, only if requested, medical Aid in Dying (MAD) will be available. In 1993 he was one of the founders of Right to Die Europe (RtDE) as a branch of WFRtDS and now serves as the president. After euthanasia law came into power the Royal Dutch Medical Association (KNMG) he founded SCEN (Support and Consultation Euthanasia in the Netherlands) to help and ensure due care criteria as listed in the law are taken care of by the physician who is intending to help the patient to die with assisted dying. He joined that organization for over 20 years with 220 consultations, every time this was a very emotional experience.