End of Life Ireland

About

End of Life Ireland (EOLI) is a volunteer led advocacy group. EOLI believes people faced with a terminal illness should have the right to choose how to die. The law should respect that right and honour their personal autonomy. The end of life is an essential part of life, deserving of dignity.  It involves not only the individual but one’s network of social relations from family and friends to carers and wider society.

We prepared an Oireachtas submission in support of the Dying with Dignity Bill 2020 which if legislated, would facilitate a choice of accessing Voluntary Assisted Dying (VAD).  This is our  submission to the Justice Committee.

EOLI pays tribute to Marie Fleming, Gaynor Ffrench and all who tirelessly campaigned and yet were denied the right to die at a time of their choosing surrounded by loved ones. We pledge to continue their work and pursue the fundamental human right to die legally and safely here in Ireland.


The Team

Janie Lazar 

As someone who has faced mortality more than once, Janie is acutely aware of the importance of quality of life and specifically, choices that impact both how we live, as well as die.  Communication, Connection, Collaboration combined with a strong sense of social justice is what underpin  what she does publicly including leading TEDx Dun Laoghaire and privately as a Specialist Speaker and Life Coach.  The direct impact of chronic pain and terminal illness on people and their families that she sees as a secular celebrant has highlighted the changing attitude towards assisted dying. ‘Listening to Gaynor Ffrench back in 2017 made me realise how much this legislation for Voluntary Assisted Dying is needed, she campaigned tirelessly right up to her death.’ Janie along with others who heard Gaynor speak back then are the team at End of Life Ireland. 

Justin McKenna

Justin has over 40 years continuous experience as a solicitor practising in the area of end of life.  He is a former chairperson of the Law Society  Committee on Probate Administration and Trusts and a former President of the Dublin Solicitors Bar Association.  He is one of the founding partners of Partners at Law Solicitors, a law firm based in Dun Laoghaire.

www.pals.ie
www. lawsociety.ie
www.dsba.ie

Alan Tuffery, PhD

Dr Alan Tuffery is a former university lecturer in physiology and was involved in student services in various roles: personal tutor, developing disability services and managing the College’s tutorial service.

After ‘retirement’ Alan taught on the Trinity Access Programmes.in a volunteer capacity, helping to provide academic advice to students. Among his current interests are the individual in society and improving the quality of life for all. He is
committed to end of life choice and dying with dignity.

Niamh Phelan, MSc.

Niamh is a technologist specialising in analytics and digital transformation in large multinationals. As a Volunteer Technologist she has lent her expertise to charities working with migrants, older people, people experiencing homelessness, people with addiction issues and people working in the sex industry. She is a Volunteer Solution Architect with the Irish Red Cross, managing their pledging platform, and is a founding member of Dublin 8 Refugee Community Sponsorship Group.
Linked In – Niamh Phelan
@niamhmphelan  
TedX Talk 2018

Judith Ashton

Judith has been a body orientated psychotherapist and massage therapist for 35+ years and she has supported  many terminally ill clients and their families.  She is also a fully qualified funeral celebrant and a recent Tedx speaker. 

Helen O’Shaughnessy

Since graduating in 1981, Helen’s nursing experience extended to working in Scotland for four years before working in the Middle East, Saudi Arabia and Yemen and on to Australia and New Zealand for 28 years. Helen loves the outdoors, sport, hiking, cycling .and swimming and as a keen triathelete, participates in marathons and Ironman events. She has actively campaigned for social change, including abortion rights, separation of church and state and the Removal of Blasphemy Laws from the Irish Constitution.  As an active Humanist and accredited celebrant in NZ, she moved back to Ireland in 2017 to care for her sister who was terminally Ill. Dying with Dignity she feels is a fundamental human right something not afforded to her sister, or many others.

Patrick Cassidy, M.Ed

Patrick counts an M.Ed. among his accomplishments and has enjoyed a career of 40 years.  He has been a HR Professional in both the automotive and life science industries and a Director of Business Development in the power industry. Currently Patrick specialises as an EHS consultant to a number of clients.

Terry Flynn

Terry has been an ethical campaigner for many years on issues from End Blasphemy Laws, Census reform and secular education to name a few. 
An advocate for choice at the end of one’s life for many years. 

Elizabeth Harpur

Liz is an experienced community volunteer having been a member of the Board of Directors of her credit union since 2012.  A Fellow of the Institute of Accounting Technicians of Ireland, she also holds a Diploma in Credit Union Governance. As a member and strong supporter of EOLI, Liz believes passionately in autonomy of choice regarding assisted dying and dying with dignity and considers the time is right to place trust in our doctors and patients with terminal illnesses to make the difficult and peaceful end of life choices which so many of us may have to face.

May Sivertsen

May is a brand identity designer. Originally from Norway she has lived in Ireland for more than twenty years. She has designed the visual communication for EOLI and she hopes her contribution helps build awareness and support for the Dying with Dignity campaign, to see legislation enacted for something she believes in.

www.trumpet.ie
Linked In – May Sivertsen

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Advisors

Cameron McLaren MD.

Dr Cameron McLaren is a Medical Oncologist from Melbourne, Victoria. He has been providing assisted dying assessments since the introduction of the Victorian Voluntary Assisted Dying Act. He strongly believes in patient-centred care and sees supporting patients’ applications to assisted dying as intrinsic to this. He is a Clinical Moderator of the Voluntary Assisted Dying Community of Practice; a resource for Victorian doctors to discuss their experiences, and a Board member of Dying with Dignity, Victoria. He is also undertaking a PhD in the effect of Voluntary Assisted Dying on patient-reported quality of life and the grief and bereavement experience of close contacts of assisted dying patients

David R. Grube MD.

David practiced Family Medicine in a small rural town in Oregon (USA) for 35 years, retiring in 2012. In 1999 a first patient asked him for medical aid in dying, and over the ensuing years he responded to patient’s requests approximately 30 times, both as Prescribing and Consulting Physician. In his role as National Medical Director for Compassion & Choices he lectures and mentor’s physicians, hospices, and medical staff about end-of-life options, and he has testified in the legislatures of numerous States.

Nick Carr MD.

Nick is a GP working in St Kilda, Victoria and honorary clinical senior lecturer in the Department of General Practice at The University of Melbourne. He did his medical training at Cambridge University and in London before moving to Melbourne in 1988. Nick is also a writer and broadcaster. He has written for many sources, including Crikey.com.au, and published a book for first time fathers. He appears regularly on radio and television. Nick is a Board member of Dying with Dignity Victoria, and has been actively involved with providing Voluntary Assisted Dying care since the Act commenced in June 2019.

Ayke Smook MD.

Ayke is a retired Dutch oncologist and surgeon, who has worked as a doctor since 1965. In private practice his patients taught him that curing is an obligation. However, if this becomes futile, the next step is care, then terminal care and, only if requested, medical Aid in Dying (MAD) will be available. In 1993 he was one of the founders of Right to Die Europe (RtDE) as a branch of WFRtDS and now serves as the president. After euthanasia law came into power the Royal Dutch Medical Association (KNMG) he founded SCEN (Support and Consultation Euthanasia in the Netherlands) to help and ensure due care criteria as listed in the law are taken care of by the physician who is intending to help the patient to die with assisted dying. He joined that organization for over 20 years with 220 consultations, every time this was a very emotional experience.

Stephen Duckworth OBE.

Stephen is Founder and Chief Executive of Disability Matters Global – a world class company promoting diversity and equality. Stephen is a Non-Executive Director of the Palace of Westminster Restoration & Renewal Delivery Authority. He is also a Trustee at Leonard Cheshire, RFU Injured Players Foundation and Global Disability Innovation Hub. Stephen has held a variety of roles during his career, including Non-Executive Director of Route2Mobility in 2003 and Adviser to the Minister for Welfare Reform and Minister for Disabled People in 2005. From 2012 to 2018 he was Chief Executive, Personal Independence Payments at Capita plc. In 2012 he was Account Director responsible for Serco’s relationship with the Cabinet Office, Number 10 and Treasury. From 2015 to 2017 he was Chair, Rehabilitation International World Conference.